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CHILDREN'S GUARDIAN ACT 2019 - SECT 160
Disclosure of information for research purposes
160 Disclosure of information for research purposes
(1) The Children's Guardian may enter into arrangements with a researcher or a
research organisation for the purposes of permitting the disclosure of
information to the researcher or research organisation (including
health information and personal information) that is held by the Children's
Guardian, a designated agency or an accredited adoption service provider.
(2)
The Children's Guardian is not to enter into arrangements under this section
unless satisfied that the arrangements will ensure-- (a) reasonable steps will
be taken to de-identify information disclosed under the arrangements, and
(b)
information disclosed under the arrangements will be treated by the researcher
or research organisation as confidential, and
(c) as far as reasonably
practicable, no publication that uses or is based on information disclosed
under the arrangements will enable the identity of an affected person to be
ascertained, and
(d) as far as is reasonably practicable,
personal information disclosed under the arrangements will be used or dealt
with in accordance with the information protection principles set out in
sections 12, 17, 18 and 19 of the Privacy and Personal Information Protection
Act 1998 as those principles would apply if the researcher or
research organisation were a public sector agency. Note : The
Privacy and Personal Information Protection Act 1998 requires public sector
agencies to deal with personal information in accordance with the information
protection principles set out in that Act.
(3) A disclosure of information
made in good faith under the arrangements does not-- (a) constitute a
contravention of a provision as to confidentiality in this Act, and
(b)
constitute a contravention of the Health Records and Information Privacy Act
2002 or the Privacy and Personal Information Protection Act 1998 .
(4) The
provisions of the Health Records and Information Privacy Act 2002 apply to
health information disclosed under the arrangements as if the researcher or
research organisation were a private sector person (within the meaning of that
Act). Note : The Health Records and Information Privacy Act 2002 requires a
private sector person that collects, holds or uses health information to
comply with the health privacy principles set out in that Act.
(5) In this
section--
"health information" has the same meaning as in the
Health Records and Information Privacy Act 2002 .
"personal information" has the same meaning as in the
Privacy and Personal Information Protection Act 1998 .
"research organisation" means an organisation prescribed by the regulations or
under the Adoption Act 2000 .
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