(1) The Chief Health
Officer is to keep a register to be known as the Rheumatic Heart Disease
Register of Western Australia.
(2) The register is to
contain all information notified under Part 2.
(3) The register may
also contain —
(a)
information provided to the Chief Health Officer by a corresponding officer;
and
(b)
information provided to the Chief Health Officer under the repealed
regulations; and
(c) any
other information that the Chief Health Officer considers appropriate, having
regard to the purposes mentioned in subregulation (4).
(4) The register is to
be kept for the following purposes —
(a) to
identify and record details of all known cases of acute rheumatic fever and
rheumatic heart disease in Western Australia;
(b) to
describe and monitor the occurrence of acute rheumatic fever and rheumatic
heart disease in Western Australia;
(c) to
monitor and improve the uptake of, and adherence to, secondary prophylaxis
treatment by persons who have been diagnosed with, or treated for, acute
rheumatic fever or rheumatic heart disease in Western Australia;
(d) to
monitor and improve clinical follow‑up, including access to medical
specialists and echocardiography, for persons who have been diagnosed with or
treated for acute rheumatic fever or rheumatic heart disease in Western
Australia;
(e) to
use data to monitor patient outcomes and improve programme strategies for the
alleviation of acute rheumatic fever and the prevention of rheumatic heart
disease in Western Australia;
(f) to
compile and publish general or statistical information about acute rheumatic
fever and rheumatic heart disease;
(g) to
carry out research into the causes, prevention, screening and treatment of
acute rheumatic fever and rheumatic heart disease;
(h) to
facilitate and assist in the establishment and maintenance of a national data
collection system by the National Coordination Unit.
(5) The register is to
be kept in a manner and form determined by the Chief Health Officer.
[Regulation 13 amended: Gazette 10 Jan 2017
p. 278.]